Privacy Notice

Cambridgeshire Down’s Syndrome Community Network

Updated: 31st March 2025

Contact details

Email: info@cambsdscn.org

What information we collect, use, and why

We collect or use the following information to provide services and goods, including delivery and third party referrals:

• Names and contact details
• Gender
• Addresses
• Emergency contact details
• Next of kin details
• Photographs or video recordings
  
• Information about care needs (including disabilities, home conditions, dietary requirements and general care provisions)
• Website user information (including user journeys and cookie tracking)

We collect or use the following information to receive donations or funding and organise fundraising activities:

• Names and contact details
• Addresses
• Donation history
• Tax payer information (for Gift Aid purposes)

We collect or use the following personal information for service updates or marketing purposes:

• Names and contact details
• Addresses
• Marketing preferences
• Recorded images, such as photos or videos
• IP addresses
• Website and app user journey information
• Records of consent, where appropriate
• Lawful bases and data protection rights

Under UK data protection law, we must have a “lawful basis” for collecting and using your personal information. There is a list of possible lawful bases in the UK GDPR. You can find out more about lawful bases on the ICO’s website.

Which lawful basis we rely on may affect your data protection rights which are in brief set out below. You can find out more about your data protection rights and the exemptions which may apply on the ICO’s website:

• Your right of access -You have the right to ask us for copies of your personal information. You can request other information such as details about where we get personal information from and who we share personal information with. There are some exemptions which means you may not receive all the information you ask for. You can read more about this right here.

• Your right to rectification -You have the right to ask us to correct or delete personal information you think is inaccurate or incomplete. You can read more about this right here.

• Your right to erasure -You have the right to ask us to delete your personal information. You can read more about this right here.

• Your right to restriction of processing -You have the right to ask us to limit how we can use your personal information. You can read more about this right here.

• Your right to object to processing -You have the right to object to the processing of your personal data. You can read more about this right here.

• Your right to data portability -You have the right to ask that we transfer the personal information you gave us to another organisation, or to you. You can read more about this right here.

• Your right to withdraw consent –When we use consent as our lawful basis you have the right to withdraw your consent at any time. You can read more about this right here.

If you make a request, we must respond to you without undue delay and in any event within one month.

To make a data protection rights request, please contact us using the contact details at the top of this privacy notice.


Our lawful bases for the collection and use of your data

Our lawful bases for collecting or using personal information to provide services and goods, including delivery and third party referrals are:

• Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

• Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:

o By engaging with Cambridgeshire Down\'s Syndrome Community Network through a range of communication means including email, WhatsApp, or social media, users of CambsDSCN will be providing basic personal information to enable them to be part of the network and benefit from the network\'s activities. This enables them to receive information about the network and activities though the different communication channels, and engage with other users in the network.

Our lawful bases for collecting or using personal information to receive donations or funding and organise fundraising activities are:

• Consent - we have permission from you after we gave you all the relevant information. All of your data protection rights may apply, except the right to object. To be clear, you do have the right to withdraw your consent at any time.

Our lawful bases for collecting or using personal information for service updates or marketing purposes are:

• Legitimate interests – we’re collecting or using your information because it benefits you, our organisation or someone else, without causing an undue risk of harm to anyone. All of your data protection rights may apply, except the right to portability. Our legitimate interests are:

o By engaging with Cambridgeshire Down\'s Syndrome Community Network through a range of communication means including email, WhatsApp, or social media, users of Cambs DSCN will be providing basic personal information to enable them to be part of the network and benefit from the network\'s activities. This enables them to receive information about the network and activities though the different communication channels, and engage with other users in the network.

Where we get personal information from

• Directly from you
• Family members or carers

How long we keep information

• All personal information is retained for the period of the user participating in Cambridgeshire Down’s Syndrome Community Network until a request is made to leave the network.
• All photographs and videos will be retained on file for use by CambsDSCN for a period of 6 months after creation in line with the Cambs DSCN Safeguarding policy and procedures. Images already in use (for example in marketing material or the CambsDSCN Website) may remain in use after the 6 month period.

Who we share information with

Others we share personal information with:

• Organisations we need to share information with for safeguarding reasons
• Suppliers and service providers

How to complain

If you have any concerns about our use of your personal data, you can make a complaint to us using the contact details at the top of this privacy notice. If you remain unhappy with how we’ve used your data after raising a complaint with us, you can also complain to the ICO.

The ICO’s address:

Information Commissioner’s Office

Wycliffe House

Water Lane

Wilmslow

Cheshire

SK9 5AF

Helpline number: 0303 123 1113

Website: https://www.ico.org.uk/make-a-complaint